Together, We’re Taking Back Tomorrow from Huntington’s Disease
No barriers. No delays. Just access to breakthrough treatments for HD.
FUNDING
ADVOCACY
HOPE
EDUCATION
“Our role is simple and urgent: turn scientific breakthroughs into real-world survival.“
About Us
Take Back Tomorrow HD focuses on one clear mission: ensuring access to life-extending treatments for those affected by Huntington’s Disease.
Funding for access to FDA-approved HD treatments when insurance coverage, Medicare timing, copays, deductibles, or lack of insurance create a financial barrier. Once the first treatment is approved, assistance will be provided through our queue-based program with a physician’s order, based solely on queue position and available funds.
Advocacy with regulators, policymakers, insurers, and healthcare leaders to make these treatments accessible and affordable for everyone who qualifies.
Education about the latest treatment developments, clinical milestones, and availability timelines—keeping the HD community informed and empowered.
While fully independent from pharmaceutical companies, we actively track treatment pipelines and regulatory progress to ensure the HD community can access newly approved therapies without delay.
Julia Book
Founder
Services
SAVING LIVES THROUGH REAL ACTION
Treatment Funding, Not Research Funding
We’re the first HD organization focused on funding access to approved treatments—not research grants. When therapies reach Phase III or get regulatory approval anywhere in the world, we help people get them. Because hope means nothing without access to treatment.
Write, Draw, Dance, or Sing. Share Your HD Story
You are the reason we exist. You have HD or you are a friend or family member. We need you. Share your experience with HD—through text, video, artwork, or however you’re comfortable. Your story builds awareness, creates community, and shows why this fight matters.
Transparent Operations for Full Accountability
Every dollar matters. Our 501(c)(3) was approved in February 2026, we plan to publish our complete financials and how funding decisions are made. No black boxes, no corporate salaries—just clarity, accountability, and a commitment to using resources where they matter most.
Fund Life-Extending Treatments for HD
We are preparing now so that, when the first HD treatment receives FDA approval, families have a path to help with the cost of access. Applications will open then, and assistance will follow our physician-order, queue-based process as funds allow.
Become an HD Social Media Ambassador
Learn the reality of Huntington’s Disease, then help the world see it. Post stories, go live, share #TBTHD tributes, and start conversations. Your platform—big or small—can drive change. We’ll give you the content; you bring the fire and passion.
Empowering Change Together
Our Mission
Take Back Tomorrow HD Foundation is a federally recognized 501(c)(3) public charity.
Take Back Tomorrow HD exists to extend life—not in theory, but in action. We fund access to
groundbreaking medical treatments for people facing the fatal neurological disease, Huntington’s,
where time is the most precious and most unaffordable resource.
Our mission is to fight for those already living on borrowed time, and to create a path forward where no
one has to choose between certain decline and impossible costs. We support therapies that have the
potential to slow the progression or cure these diseases, preserve quality of life, and give people back
the years that were taken from them.
We believe time shouldn’t be something only the wealthy can buy.
Your questions answered
Get informed now. Answers to your common questions
Frequently asked questions
What is Huntington’s Disease?
Huntington’s Disease (HD) is a fatal genetic neurodegenerative disorder that progressively breaks down nerve cells in the brain. It affects movement, cognition, and behavior, typically manifesting in adulthood. HD is caused by a mutation in the HTT gene, and if one parent has HD, each child has a 50% chance of inheriting it. Currently, there is no cure, but breakthrough treatments are finally reaching clinical approval stages—and that’s where we come in.
How do you decide who receives funding?
We use a simple, fair queue-based system. Once treatments become available, applications will be processed in the order they’re received. With a physician’s order for an FDA-approved HD treatment, assistance is provided based solely on queue position and available funds. We do not means-test applicants, rank them by disease progression, or decide whose need is more deserving. Payment goes directly to the hospital, pharmacy or treatment facility, and if you have insurance coverage, that’s used first.
When will you start funding treatments?
We are currently accepting donations. Once the first HD treatment receives FDA approval, we will begin accepting applications through an online form. We are preparing now so that families are ready when that moment arrives.
Where does my donation go?
Every dollar is accounted for. We will publish complete financials showing exactly how funds are allocated between direct treatment funding and minimal operating costs. There are no corporate salaries or black boxes—just transparency and a commitment to getting treatments to people who need them.
What treatments are you tracking?
We actively monitor the global HD treatment pipeline, including clinical-trial progress, regulatory review, and FDA approval milestones. We share what we learn so families can understand what is changing, what remains uncertain, and what steps may come next.
How is Take Back Tomorrow HD different from other HD organizations?
We’re the first HD organization focused exclusively on funding access to approved treatments—not research grants or scientific studies. When breakthrough therapies reach Phase III trials or get regulatory approval, we help people get them. Because hope means nothing without access, and waiting isn’t an option when treatments finally exist.