No Huntington’s disease treatment has been fully approved yet—but for the first time, real disease-modifying therapies are close.

Gene therapies like AMT-130 and other emerging treatments are moving through the pipeline, and history shows that when these kinds of advanced therapies reach patients, they are often extraordinarily expensive. Based on current data and comparable treatments in other diseases, costs could reach millions per patient.

We cannot wait until approval day to start preparing.

Donate

Your donation helps us build treatment access before the crisis arrives. No Huntington’s disease treatment has been fully approved yet, but we know therapies are coming—and based on current data and comparable treatments in other diseases, we know they are expected to be extraordinarily expensive.

Our primary focus is funding direct treatment access: payments made directly to hospitals, treatment centers, and licensed providers when therapies become available. We are raising funds now so that cost is never the reason someone loses their chance at treatment.

Ready to help?

Use the link below to donate and help us prepare for the moment treatment becomes available.

https://www.paypal.com/donate/?hosted_button_id=VFTBLEBWQ9BZ2

Volunteer

We need people willing to help with awareness, outreach, events, social media, donor support, and community education. We also need WordPress website support—people who can help maintain, improve, and keep our website updated as the Foundation grows. You do not need to be an HD expert. You just need to care enough to help us build what patients will need.

Share Our Story

Most people still do not realize how close these therapies may be—or how many families could still be locked out by cost. Sharing our mission helps us reach donors, advocates, and families before approval becomes a financial emergency instead of a medical breakthrough.