Together, We’re Taking Back Tomorrow from Huntington’s Disease
No barriers. No delays. Just access to breakthrough treatments for HD.
FUNDING
ADVOCACY
HOPE
EDUCATION
“Our role is simple and urgent: turn scientific breakthroughs into real-world survival.“
About Us
Take Back Tomorrow HD focuses on one clear mission: ensuring access to life-extending treatments for those affected by Huntington’s Disease.
Funding for Phase III clinical-trial-approved compassionate use treatments and FDA-approved therapies—or their equivalents approved anywhere in the world—as they become available.
Advocacy with regulators, policymakers, insurers, and healthcare leaders to make these treatments accessible and affordable for everyone who qualifies.
Education about the latest treatment developments, clinical milestones, and availability timelines—keeping the HD community informed and empowered.
While fully independent from pharmaceutical companies, we actively track treatment pipelines and regulatory progress to ensure the HD community can access newly approved therapies without delay.
Julia Book
Founder
Services
SAVING LIVES THROUGH REAL ACTION
Fund Life-Extending Treatments for HD
We’re preparing to fund access to breakthrough HD therapies as they reach Phase III trials and FDA approval. Donations opening soon through our fiscal sponsor, Social Good Fund. When treatments are approved globally, we’ll be ready to help people access them immediately.
#FightLikeBlam and Why We Are Doing This
When founder Julia’s daughter tested positive for Huntington’s Disease at 18, they were told she’d be disabled by 28 and gone too soon. But treatments are coming—and together we’re bulldozing every barrier to get them to her and everyone else fighting HD.
Become an HD Social Media Ambassador
Learn the reality of Huntington’s Disease, then help the world see it. Post stories, go live, share #TBTHD tributes, and start conversations. Your platform—big or small—can drive change. We’ll give you the content; you bring the fire and passion.
Treatment Funding, Not Research Funding
We’re the first HD organization focused on funding access to approved treatments—not research grants. When therapies reach Phase III or get regulatory approval anywhere in the world, we help people get them. Because hope means nothing without access to treatment.
Write, Draw, Dance, or Sing. Share Your HD Story
You are the reason we exist. You have HD or you are a friend or family member. We need you. Share your experience with HD—through text, video, artwork, or however you’re comfortable. Your story builds awareness, creates community, and shows why this fight matters.
Transparent Operations for Full Accountability
Every dollar matters. Once our 501(c)(3) is approved, we’ll publish our complete financials and how funding decisions are made. No black boxes, no corporate salaries—just clarity, accountability, and a commitment to using resources where they matter most.
Empowering Change Together
Our Mission
Take Back Tomorrow HD exists to extend life—not in theory, but in action. We fund access to
groundbreaking medical treatments for people facing the fatal neurological disease, Huntington’s,
where time is the most precious and most unaffordable resource.
Our mission is to fight for those already living on borrowed time, and to create a path forward where no
one has to choose between certain decline and impossible costs. We support therapies that have the
potential to slow the progression or cure these diseases, preserve quality of life, and give people back
the years that were taken from them.
We believe time shouldn’t be something only the wealthy can buy.
Your questions answered
Get informed now. Answers to your common questions
Frequently asked questions
What is Huntington’s Disease?
Huntington’s Disease (HD) is a fatal genetic neurodegenerative disorder that progressively breaks down nerve cells in the brain. It affects movement, cognition, and behavior, typically manifesting in adulthood. HD is caused by a mutation in the HTT gene, and if one parent has HD, each child has a 50% chance of inheriting it. Currently, there is no cure, but breakthrough treatments are finally reaching clinical approval stages—and that’s where we come in.
How do you decide who receives funding?
We use a simple, fair queue-based system. Once our 501(c)(3) is approved and we begin funding treatments, applications are processed in the order they’re received. If your physician has submitted you for compassionate use (Phase III trials) or you’re approved for an FDA-approved therapy, you qualify. We don’t review medical records—your physician’s approval is sufficient. Payment goes directly to the hospital or treatment facility, and if you have insurance coverage, that’s used first.
When will you start funding treatments?
We’re currently awaiting final 501(c)(3) approval from the IRS and working with our fiscal sponsor, Social Good Fund, to process donations. Once approved, we’ll begin accepting applications and funding treatments as resources allow. We’re actively monitoring treatments like AMT-130 as they progress through Phase III trials and approach FDA approval.
Where does my donation go?
Every dollar is accounted for. Once our 501(c)(3) is approved, we’ll publish complete financials showing exactly how funds are allocated between direct treatment funding and minimal operating costs. There are no corporate salaries or black boxes—just transparency and a commitment to getting treatments to people who need them.
What treatments are you tracking?
We’re actively monitoring the global HD treatment pipeline, with particular focus on therapies reaching Phase III trials and regulatory approval stages, including AMT-130 and other gene-targeting treatments. We track approvals from the FDA, EMA, and equivalent agencies worldwide to ensure we’re ready to help people access treatments the moment they become available.
How is Take Back Tomorrow HD different from other HD organizations?
We’re the first HD organization focused exclusively on funding access to approved treatments—not research grants or scientific studies. When breakthrough therapies reach Phase III trials or get regulatory approval, we help people get them. Because hope means nothing without access, and waiting isn’t an option when treatments finally exist.