Our Mission
Take Back Tomorrow exists to ensure that every person facing Huntington’s Disease has access to life-saving treatment — not just the families with resources, influence, or someone who knows how to fight for them.
We believe access shouldn’t depend on privilege. It should depend on need.
Why This Matters
Huntington’s Disease has taken four generations from founder Julia’s stepdaughter Brandalin’s family. Her great-grandmother, grandmother, and mother all died young. Now, at just 19 years old, Brandalin faces the same fate.
Julia knew this possibility long before the diagnosis. Because Brandalin’s mother had HD, Julia understood that Brandalin might suffer the same fate — and she prepared for it. She spent years researching every study, tracking emerging science, learning the medical landscape, normalizing difficult conversations, and building a life where HD wasn’t a hidden monster but an acknowledged reality. She encouraged coordinated sports to strengthen neural pathways and created a home where information, not fear, was the foundation.
So when the diagnosis came — one month after Brandalin’s 18th birthday — the news was devastating, but it was not unexpected. The family had already braced themselves. Brandalin adjusted her life path with courage, accepting her terminal diagnosis and choosing to live whatever time she had left with joy and strength. Julia did what she had spent years preparing for: she fought.
The family took Brandalin to Johns Hopkins — the front lines of HD research — to give her every possible advantage. Still, they were told the truth every HD family fears:
There would be no treatment in time to save her.
They accepted that she would die. They positioned her strategically for opportunities if something ever became available — but they never expected anything would.
Then everything changed.
A Treatment Exists — But Access Doesn’t
For the first time in history, there is real hope. UniQure’s gene therapy AMT-130 has shown a 75% slowing of disease progression, receiving Breakthrough Therapy designation in April 2025.
Then in November 2025, the FDA reversed its prior guidance, stating that Phase I/II data with external controls may no longer be sufficient for approval. Suddenly the timeline became uncertain. Families were thrown into limbo.
And even with approval, access remains the biggest barrier:
The expected cost is $3–10 million per patient.
Without treatment, people like Brandalin will die.
With it, they could live full lives.
And gene therapy is only the beginning. The next five years may bring breakthroughs at a pace we’ve never seen.
The Huntington’s Community Is Fighting Back
Major HD organizations — HDSA, Help4HD, HD Reach, HDF, HDYO — have unified in a petition urging the FDA to uphold the accelerated approval pathway families were promised.
Take Back Tomorrow stands fully with this fight.
But we know approval is only the first barrier.
Access is the true mountain.
Our Commitment
Julia is fighting to save her daughter — but this mission is far bigger than one family.
Brandalin has someone who knows how to research, advocate, and push through impossible systems. Most families don’t.
Huntington’s Disease affects over 30,000 Americans, with hundreds of thousands more at risk. Many families do not have:
Medical literacy
Connections to research centers
Legal or financial pathways
Advocacy networks
Someone who refuses to quit
But they deserve the same chance at life.
Take Back Tomorrow is committed to:
Advocating for appropriate FDA pathways for AMT-130 and future HD treatments
Removing financial barriers so all HD families can access lifesaving therapy
Elevating the voices of HD families in policy and pharmaceutical conversations
Creating a treatment-access model that can be replicated for other rare diseases
The Path Forward
The science is here. The treatments are emerging. The urgency is real.
Take Back Tomorrow will raise funds, pursue grants, build partnerships and leverage every available resource. We will tell Brandalin’s story — and the stories of thousands of families fighting the same battle.
Because the truth remains:
Every person with Huntington’s Disease deserves access to life-saving treatment.
Julia has to save her daughter.
But what about all the others who don’t have a Julia?
That’s why Take Back Tomorrow exists.
Join the Fight
This is bigger than one life.
This is about permanently changing the trajectory of Huntington’s Disease for every family who will face it.